Posted by: Sandi | October 25, 2006

Waiting lists…

Ah, the well kept secret of special needs services -waiting lists. Funny how these are never mentioned in the glowing reviews of services offered by States, Counties and private organizations. It’s not until you’ve filled out reams of paperwork, sat through meetings and spilled your entire life history to complete strangers that the entire process comes to a grinding halt. Great, your child qualifies…we’ll add you to the waiting list. What? Waiting list? How long?…

I assume some areas are better than others, but I’m sure almost every parent of a child with special needs has encountered the dreaded waiting list at some point. To say it’s frustrating is an understatement. Often a need for a particular service is brought on by a crisis; and then to find help only to be told to “take a number”…ugh 😡 Here’s our waiting status:

Medicaid Waiver – 3+ years (and we’re on the “urgent” list!)
Therapeutic Respite Care – 1 year 5 months
In-Hospital Neurobehavioral Program – 10 months

Jess may be an adult before we make it to the front of the line.

What are you waiting on?

Advertisements

Responses

  1. Hi Sandi,
    Great blog, love the photos! Since Ben is just a baby we haven’t encountered waiting lists…yet. Excuse my ignorance: just what is a medicaid waiver??? Here’s hoping that they are just giving you a conservative estimate of the waiting time. – Karen.

  2. Thanks Karen! I’ve enjoyed seeing Ben’s photos as well…he is just darling. The Waiver allows your child to qualify for Medicaid based on his diagnosis and not the parent’s income. Usually you can get services such as respite care, physical therapy, speech, augmentive devices, etc as well as medical. It was put in place to encourage states to offer community based services vs. institutionalization. States vary on the type of waivers they offer, qualification requirements, funding, services offered, etc. Unfortunately my state is pretty stingy with funding for waiver slots and thus we have a waiting list of close to 4,000 people. The wait times I listed are the amount of time we have already been on those waiting lists. Not sure how much longer we will have to wait…sigh! 😦 Hope this helps and thanks for writing!

  3. Oh my god, thats disgusting!
    What a shambles! We have appointments galore approaching but its taken 3 months to see the geneticist even though we have been told that its almost certain that Sonny had cdls.
    His cleft is the priority at the moment and we’ve been told that that should be fixed in the next 3 to 6 months.
    We have the NHS is the UK, waiting lists are normally bad but with paediatrics apparently its very good – so my paed told me!

    My health visitor has already discussed respite etc, which I feel a bit of a fraud accepting at the moment as Sonny is a tiny baby and caring for him isnt that much different to a healthy baby apart from managing his reflux.

    I hope you and Jessica get the help you need alot sooner than predicted. xxxxxxxx

  4. I think our state (Pennsylvania) must be a little better: We applied for Medicaid while Ben was still in the NICU at the suggestion of the social worker there, even though we have private health insurance. We don’t qualify for social security because of our income, but we DID get Medicaid based solely on Ben’s diagnosis; we got the approval by the time he was 2 months old. That was fortunate because his hearing aids (for some reason I don’t understand) aren’t covered by our private insurance, but WERE paid for by Medicaid. We haven’t looked into getting any other services for Ben yet, but I am sure we will as he gets older. Maybe that’s where the waiting time will be. It sounds like in the UK the services are much better. Maybe we should move there! 🙂 – Karen.

  5. Thanks Kelly! Hopefully our wait won’t be forever. Please don’t feel like a fraud for accepting respite and other services. Even if you don’t need it right now it’s easier to get a good support team established early on.

    Karen, I’m glad to hear you were able to get Medicaid for Ben right away, that’s wonderful. Sounds like PA is a good place to be, so hopefully other services will be easy to obtain as well. 🙂

  6. Kellersportsplace2924$anchor$basketball Betting,final Four,final Four Betting,final Four Gambling,final Four Sports Book,final Four Sportsbook,march Madness,march Madness Betting,march Madness Gambling,march Madness Sports Book,march Madness Sportsbo…

    Kellersportsplace2924$anchor$basketball Betting,final Four,final Four Betting,final Four Gambling,final Four Sports Book,final Four Sportsbook,march Madness,march Madness Betting,march Madness Gambling,march Madness Sports Book,march Madness Sportsbook…


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

Categories

%d bloggers like this: